Interstitial Cystitis - Battling the Unknown

Sounds like an infection, feels like an infection, but its not an infection.

In January of 2020 a patient came to SFIM with the diagnosis of interstitial cystitis and after 14 months of dealing with continuous pain and an ever changing medication list, she was ready to try something new.

You know that feeling when you buy a red car, you start seeing red cars everywhere.  After meeting this patient and diving deep into her case, I learned even more about the complexities of IC and other pelvic inflammatory disorders.  As that happened, more patients just like her began to contact the office and I began to see how common her story actually was.  I'm to report after 6 months of receiving acupuncture and dry needling alongside natural supplements, the difference in pain levels and her frequency of flare ups has decreased immensely. 

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Signs, Symptoms, and Conventional Medicine Approach

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​The bladder is the organ in the human body that stores urine.  When the bladder is full, it signals your brain that it’s time to urinate by communicating through the pelvic nerves. This is what creates the urge to urinate. With interstitial cystitis, there is something confusing the urinary bladder system.  The person feels the need to urinate more often and with smaller volumes of urine than most people.

The signs and symptoms of interstitial cystitis vary from person to person. If you have interstitial cystitis, your symptoms may also vary over time, periodically flaring in response to common triggers, such as menstruation, sitting for a long time, stress, exercise and sexual activity.
Interstitial cystitis signs and symptoms may include:

• Pain in your pelvis or perineum (chronic or acute)
• A persistent, urgent need to urinate
• Frequent urination, often of small amounts, throughout the day and night (sometimes up to 60 times a day)
• Pain or discomfort while the bladder fills and relief after urinating.
• Pain during sexual intercourse.

This sounds similar to a urinary tract infection but there is usually no infection. However, symptoms may worsen if a person with interstitial cystitis gets a urinary tract infection.

The exact cause of interstitial cystitis isn’t known, but it’s likely that many factors contribute. For instance, people with interstitial cystitis may also have a defect in the protective lining (epithelium) of the bladder. A leak in the epithelium may allow toxic substances in urine to irritate your bladder wall. Other possible but unproven contributing factors include an autoimmune reaction, heredity, infection or allergy.

These factors are associated with a higher risk of interstitial cystitis:

• Up to 90% of people with IC are women.  Symptoms in men look like interstitial cystitis, but they are usually associated with an inflammation of the prostate gland (prostatitis).
• Skin and hair color. Having fair skin and red hair has been associated with a greater risk of interstitial cystitis.
• Most people with interstitial cystitis are diagnosed during their 30s or older.
• Existing chronic pain disorder. Interstitial cystitis may be associated with other chronic pain disorders, such as irritable bowel syndrome or fibromyalgia.

Interstitial cystitis can result in a number of complications, including:

• Reduced bladder capacity. Interstitial cystitis can cause stiffening of the bladder wall, which allows your bladder to hold less urine.
• Lower quality of life. Frequent urination and pain may interfere with social activities, work and other activities of daily life.
• Sexual intimacy problems. Frequent urination and pain may strain your personal relationships, and sexual intimacy may suffer.
• Emotional troubles. The chronic pain and interrupted sleep associated with interstitial cystitis may cause emotional stress and can lead to depression.

While there is no real cure for IC in conventional medicine, it symptoms tend to temporarily subside after a period of time.  Conventional treatment is mostly to ease the symptoms and can include physical therapy, NSAIDs, anti-depressants, and certain pharmaceutical products that coat the bladder epithelium to help with inflammation.  Surgery is usually not an option.

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According to Chinese Medicine...

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​According to Chinese medicine, not all people who develop IC get the condition from the same root causes.  Acupuncture and Traditional Chinese Medicine work by correcting imbalances in the body and reset the body to bring it back to health. I like to think of this as hitting the reset button. For the treatment of Interstitial Cystitis, acupuncture can reduce the pain, frequency and discomfort of urination, along with the stress that can come with it.
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Common imbalances for Interstitial Cystitis include qi weakness, qi stagnation (lack of circulation of qi), and heat. It is not uncommon for people to suffer from more than one of these imbalances and it is important to locate which imbalance is particular to your situation so as to better guide the course of treatment. This is why it is important during the initial visit, to take an in-depth history of your symptoms to get a clear picture of what you are experiencing.

Imbalances will correlate with specific symptoms. For example, people with qi weakness, or lack of energy, are often tired and have digestive problems. Those with qi weakness may experience frequent urination, urination at night, and a feeling of fullness in the abdomen. Qi stagnation is a lack of circulation of the energy and can cause pain, bloating, and muscle spasms. Heat in the body can cause dryness, burning urination, abnormal sweating, stiff joints, and headaches.

Other relevant symptoms when designing a specific and effective course of treatment for IC are muscle tightness in the pelvis, back, abdomen, and legs. This is where Dry Needling can be so effective. Trigger points in the gluteus maximus and medius, adductor magnus, and illopsoas, are taken into account because they can produce pain in the pelvic floor. Another common symptom of IC is sacro-iliac joint dysfunction, which can also be an important factor in treatment.

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If you've been suffering from IC or other pelvic inflammatory disorders, contact us and we can see if a holistic approach is right for you. 

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